Sundowning is a distressing symptom that affects people in mid to late-stage Alzheimer’s and other forms of dementia, and as the condition progresses, the symptoms tend to worsen. Those with dementia can become hyperactive, agitated and confused, and these symptoms can extend into the night, causing sleep disruption.
Sundowning effects people in lots of different ways, but common symptoms include:
It’s important to remember that as dementia progresses, a loved one’s behaviour and the way they communicate with you will naturally change.
When these changes happen towards the end of the day, it can difficult to distinguish them from sundowning symptoms. Take a moment to talk to family members and carers about these changes to understand if there may be other reasons for them aside from sundowning.
Watching a loved one becoming irritated, upset, hyperactive – or demonstrate other behavioural problems – can be distressing, but it’s important to remember that they are not in control of their actions. There are also lots of things you can try to minimise sundowning symptoms.
Every person with dementia is unique, and it may take a while to find out what works best for your loved one. Keeping a detailed diary of your loved one’s behaviour can be a useful way of identifying triggers and managing symptoms.
The most important thing to do is to ensure that your loved one has a routine tailored around sundowning behaviour to eliminate it as far as possible.
To this end, it is helpful to draw up a timetable or schedule, ensuring that busy activities and outings are arranged for the morning when your loved one is feeling at their best. Once you have a routine in place, it’s essential to stick to it.
During the afternoon, try to engage your loved one in calming activities that don’t require too much thought. The aim is to undertake simple and engaging activities at this time, ones that aren’t too stimulating. Make sure that any clutter is tidied away, as this can cause aggravation later in the day.
Raising your voice or becoming angry will only worsen the situation, so try to remain calm, no matter what the provocation. Speak in clear sentences, don’t try to rationalise with them and keep reassuring them that everything is ok.
Try not to let your loved one have an afternoon nap if possible, as this may contribute to confusion later – if they have to take a nap, ensure that it doesn’t last too long.
Try to minimise their caffeine intake too, or keep caffeinated drinks for the morning.
Making the home a suitable environment for those with dementia is another point. In the evening close the windows to reduce any unexpected or confusing noises from outside. Ensure rooms a comfortable temperate, and are well lit so that there are no shadows which could cause upset.
Consider the use of light therapy, which makes use of bright daylight-tones to help stimulate the brain. Some families find that light therapy is helpful in the mornings, while others favour its use around twilight, to reset the body’s biological clock and restore the circadian rhythm. Some dementia-friendly products can help make that happen.
Many of us will naturally experience tiredness when the clocks change. However, for those with sundowning symptoms, Daylight Savings can be an intensely confusing and anxious time. Sundowning symptoms will often be more pronounced in the days and weeks following the clocks going back, so here are a few additional steps you can take to help them through seasonal changes.
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A dementia diagnosis or arranging dementia care can be a tough moment to comprehend. Among the confusion and worry that these situations can bring, writing poetry can be a great release. This National Poetry Day, we thought it would be the perfect opportunity to share some examples of verse exploring the impact of dementia on those living with it, and their loved ones.
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