
Lewy Body Dementia: Symptoms, Stages and How to Care
Paola Labib | Editorial Contributor
10-minute read | 16/10/2026


Dementia changes daily life, but it doesn't have to stop someone enjoying it. With the right support, many people continue to live full, active lives after a diagnosis. This guide covers practical ways to make daily life easier, activities that genuinely help, and where families can find support. We also look at how a live-in carer can help someone keep living well at home.
There's no right or wrong way to react to a diagnosis of dementia. Some people feel a strong sense of grief. Others feel some relief at finally understanding the symptoms they've been experiencing.
After a diagnosis, keep these things in mind:
"Persons living with dementia are usually capable of more than we can imagine." - Bob DeMarco, founder of the Alzheimer’s Reading Room
Your loved one might need time before sharing their diagnosis with others. Or they might want to tell those closest to them straight away. If they’re unsure how to approach these difficult conversations, it can help to think together about:
Some people feel more comfortable speaking to someone outside the family first. A trained dementia professional can also help your loved one plan how to tell others close to them.

Wendy Mitchell became a dementia campaigner after being diagnosed with early onset dementia at the age of 58. She shared her experience of living with dementia on her blog, Which Me Am I Today?, and gave advice to families supporting a loved one after diagnosis. Wendy passed away in 2024, but her advice still helps families today. In her interview with Elder, she said she actually preferred the phrase “living the best your circumstances allow” over “living well”. She felt it was a goal everyone could reach, whatever stage of dementia they’re at.
Here’s Wendy’s advice for supporting someone after diagnosis:
A person with dementia will find some things harder than before. These steps can make managing daily tasks easier for the whole family.
Change can cause confusion or distress. A weekly timetable, kept somewhere visible like the fridge, can help. If certain times of day suit your loved one better, schedule tasks that need more concentration, such as shopping or appointments, around those times. This is also worth bearing in mind if your loved one experiences sundowning, since evenings may not be the best time for anything demanding.
Keep items like glasses, keys and a wallet in the same spot every time, so you and your loved one always know where to find them. A pill organiser box (dosette box) lowers the risk of missed or misplaced medication, and helps your loved one take it at the right time.
Set up direct debits for your loved one’s regular bills. This way, nothing gets missed.
Dementia makes it more important, not less, to look after physical health. Untreated sight or hearing problems can make communication harder than it needs to be. The NHS offers free eye tests for people over 60, and a GP can arrange hearing tests and treatment.
Keep windows clear so natural light gets in, and add automatic sensor lights to hallways and bathrooms. This helps minimise confusion and reduce the risk of falls. Soft furnishings cut background noise too.
If depth perception or telling shapes apart becomes difficult, remove rugs and add contrasting colours around the home. Avoid bold patterns, as these can cause disorientation. Labels on cupboards and doors, such as a toilet sign on the bathroom door, help too. Our guide to creating a dementia-friendly home environment covers this in more detail.
“I’ve learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” - Maya Angelou
Many activities can benefit people with dementia, and we've shared some ideas below. If you're planning these for a loved one, remember that nobody wants to be told how to spend their time. Plan activities together, so they match the person's hobbies and interests and genuinely improve their quality of life.

Why? If you and your loved one enjoy arts and crafts, there's no reason to give it up. Creative activities build a sense of achievement and help motor skills.
Things to try:
Why? Staying active helps with balance and coordination, and it's a genuine mood booster. Exercising outside also helps regulate the body clock, which can ease confusion and improve sleep.
Things to try:
Before heading out, check opening times and whether the venue has seating, a cafe or toilets. It's also worth checking entry costs. Many venues give a carer or companion completely free entry when they accompany someone who’s eligible. Schemes like the CEA Card at cinemas, or a venue’s own access scheme, make this possible. This is usually free entry, not half price, so it's always worth asking before you pay.
Why? Staying social matters for mental health, since many people with dementia feel isolated or lonely because of the condition. Social activities boost self-esteem, support communication, and help someone feel connected to their community.
Things to try:
Why? A person with dementia may find it easier to recall things from years ago than recent memories. These memories can boost a sense of identity, offer comfort, and create chances to connect with friends and family.
Things to try:
Why? For people with more advanced dementia, touch, sound and smell can help them remember and express emotions. A sensory experience can also help someone feel safe and comfortable, and engage with others.
Things to try:

Joanne's mum, Patricia, has mild dementia, and that hasn't stopped her enjoying life. Patricia's live-in carer, Rose, has taken the time to learn what makes her tick, from trips to her old singing group to looking after her cat, Adele. Rose lets Patricia do what she still can, like helping to make tea, so she stays involved and keeps a sense of control.
"If my mum is happy, the rest of the family are happy too", says Joanne.
For families worried about keeping a loved one engaged and happy at home, Joanne's story shows how the right support can help someone keep doing what they love.
It can help to know what support is available. A carer who moves in can help your loved one stay at home, safe and supported, with the routines they already know. Our guide to dementia care covers your options, including live-in care.
If you’re wondering whether your loved one needs this kind of support day to day, our care advisors are happy to talk it through with you, whatever stage they’re at.
0333 920 3648Elder is an introductory agency and therefore does not direct, control, monitor or oversee the ongoing delivery of care. This article is for general information only and is not a substitute for professional advice, which should be sought when appropriate.

Paola Labib | Editorial Contributor

Earl Estologa | Editorial Contributor

Inna Oleksiienko | Editorial Contributor

Earl Estologa | Editorial Contributor

Earl Estologa | Editorial Contributor

Earl Estologa | Editorial Contributor